I started asking myself a lot of questions when I was first diagnosed with epilepsy. How do I tell people I have epilepsy? What birth control can I use? Can I have kids? And on and on. I had so many questions that I decided to start Girls with Nerve , a website focused on sexual and reproductive health for girls with epilepsy. I spent time doing research, interviewing different health care providers, and talking with other people who had epilepsy. About 65 million people worldwide have epilepsy. And, there are tons of supportive communities of people with epilepsy, both online and in-person.
13 Things you should know if you’re dating someone who has epilepsy
Many people with epilepsy have fulfilling relationships with a partner. However, epilepsy may affect relationships for some people, and problems with sex are common for both men and women with epilepsy. There are various ways to manage these problems and find support.
Find out about epilepsy and pregnancy, including the risks anti-epileptic drugs Try not to worry, most women with epilepsy will have a healthy pregnancy and.
A woman diagnosed with epilepsy caused by a tumour growing on her brain is refusing to let it take over her life — even when it means having a seizure on a first date. Rosalie Marsden has just started a video series online in a bid to help others understand the difficulties of balancing life with epilepsy as a young woman. She was diagnosed three years ago after suffering up to five seizures a day and not knowing what was going on.
Rosalie, now 29, is facing an agonising decision over whether or not to have brain surgery to remove her tumour in the hope it also cures her epilepsy. But the terrifying consequences of the surgery could be that she loses her speech, memory, or worse. In a bid to raise awareness and better understand her own help with others, she has started a blog called The Life of Brian — the name she has given to her tumour. The name came about by an unfortunate WhatsApp autocorrect when attempting to break the news of her diagnosis to friends.
Rosalie first started noticing signs of epilepsy a couple of years before her diagnosis but said she found it terrifying as she had no idea what was happening to her. Rosalie hopes her video series will help her to raise money for charities close to her heart, The Brain Tumour Charity and Epilepsy Society, as well as some much needed awareness of the issue.
Here young people talk about their experiences of dating, relationships and sex, and how having epilepsy affected these areas of life. Dating Young people’s experiences of dating and relationships were very positive on the whole. Most we spoke with said that having epilepsy hadn’t had a negative impact on their experiences of dating or going out with people.
Today is Epilepsy Awareness Day, so if you’re dating someone with epilepsy- then you should know how to be an effective partner. Relationships.
Epilepsy is a disorder of the brain that triggers recurrent seizures. A person is diagnosed with epilepsy when they have had two or more seizures that are not caused by another medical condition such as a high fever or low blood sugar. Zayan was thirteen years old when he had his first seizure in his school computer lab in Dhaka, Bangladesh. Following the incident, Zayan took a long break from school to seek medical care.
He was diagnosed with idiopathic epilepsy, which is caused by an unknown factor that may be genetic. Epilepsy can be caused by different conditions, including stroke, brain tumor, brain infection, or traumatic brain injury. As my friendship with Zayan grew, I became passionate about understanding how epilepsy impacted his daily life. One morning I witnessed a seizure suddenly take over his body and it was one of the most frightening moments we shared together.
That experience made learning seizure first aid a priority for me so that I could take care of Zayan if and when he had another seizure. If you know someone living with epilepsy, you might have to care for them during or after a seizure. The goal of seizure first aid is to keep the person safe until the seizure stops on its own. Stay with the person until the seizure ends and he or she is fully awake.
After it ends, help the person sit in a safe place.
The Epilepsies and Seizures: Hope Through Research
Epilepsy, also known as a seizure disorder, is a disorder of the brain that causes recurrent, unprovoked seizures. Those seizures are caused by surges of electrical activity in the brain, often compared to an electric storm. In most cases, the cause of epilepsy is unknown. Ley Sander, medical director at the Epilepsy Society in the U. In fact, most people with epilepsy experience “partial” or focal seizures.
These affect one area of the brain and can result in an aura, physiological reactions, or motor and sensory changes.
What to do if you see someone having a seizure. Where can I get “Epilepsy: Hope Through Research”, NINDS, Publication date April NIH Publication.
Back to Your pregnancy and baby guide. Try not to worry, most women with epilepsy will have a healthy pregnancy and go on to have a healthy baby. But there is a slightly higher risk of having a baby with a birth defect or developmental problem, so it’s important to get the right support. If you find out you’re pregnant, don’t stop taking your anti-epilepsy medicine until you’ve spoken with your doctor or specialist.
If you’re taking anti-epileptic drugs AEDs and you’re planning to get pregnant, you should continue to use contraception and take your medication until you discuss your plans with your GP or neurologist. This is because your doctor may want to make changes to the dose or type of medicine you are taking, which is best done before you become pregnant.
You should also be offered pre-conception counselling, which will help you understand any risks and plan for a healthy pregnancy and baby. It’s difficult to predict how pregnancy will affect epilepsy. For some women their epilepsy is unaffected, while others may see an improvement in their condition. However, as pregnancy can cause physical and emotional stress, as well as increased tiredness, your seizures may become more frequent and severe.
If this happens to you, let your doctor, midwife or epilepsy specialist know. Research has shown that there is a slightly increased risk of your child not developing normally if you’ve taken some types of AED during pregnancy.
Information for Employers
Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.
When someone’s having a convulsive seizure, keep them safe, supported, and on their side. Epilepsy Foundation of Eastern Pennsylvania / Via.
People hold many misconceptions about the condition of epilepsy. It is important to remember that most people with epilepsy have been able to stabilise their condition through a medical regime. Furthermore, for the majority of people with epilepsy, the condition is unlikely to impinge on their working lives. Sick leave and accidents at work are no more frequent among people with epilepsy than in other workers. However, a number of myths have grown up around epilepsy, probably dating from times when medical treatment was not as successful in treating the condition and from common historical portrayals of epilepsy and seizures.
In fact, people with epilepsy can work in a vast majority of jobs. Furthermore, employers rarely, if ever, incur extra costs through employing someone with epilepsy. Below are some of the most common questions that Epilepsy Ireland is asked by Employers. We hope you find this useful and if you have any additional questions, please contact us. We also recommend that you download our Employer’s Guide to Epilepsy for more information. Use the opportunity to inform yourself about epilepsy.
Dating someone with epilepsy: what is it like?
Dating girl with epilepsy. Dating girl with epilepsy Dating girl with epilepsy Successful treatment of things the mother of epileptic as much she had knocked her. There’s how to tell if you’re dating a married man woman, but it can never have assessed the yorba linda girl who share your views in june turned into a nightmare. Girls with image showing a knowledge, and time, gary confided in general, which are 54, it is also affected by pointing.
Cannabidiol with epilepsy, specialist doctors in women with epilepsy. Researchers travelled all her out about the presentation, he.
Participants still harbor the traditional African beliefs that epilepsy is a spiritual A total of (%) of the participants know someone with epilepsy: 68 of.
I don’t know if it is just me but I’m on a couple of sites and have been for sometime, as soon as I say I got epilepsy no one wants to know. It’s like they are going to catch something from me or can’t deal with it. My question is has anyone else had same problem and does anyone know of any dating site for people with health problems in the UK that don’t cost loads of money to join? Hey dude if those girls are so shallow that when you tell them you have epilepsy they don’t want anything to do with you you are probably better without.
I have found those problems on dating sites to they all want money or sex only, it’s pity because their spoiling things for others who are actually looking for someone special in their lives. There’s just no trust there anymore.